Role of Informed Consent in Ethical Data Collection, Sharing and Reuse

Are you collecting research data involving human participants? Do you plan to share these data? Understanding the role of informed consent when working with human participants is ethically crucial.

Join us for a free, 90-minute online workshop designed to guide researchers through the complexities of informed consent in the context of data archiving and future reuse.

This session will clarify the difference between ethical and legal consent, emphasising that while consent can be a legal basis for processing personal data and data sharing, ethical considerations must also be addressed regardless of the legal bases used. We will explore how to ensure that consent is informed and respects participants' rights from an ethical perspective.

This session will also focus on considerations for preparing documentation such as consent forms and participant information sheets when it comes to data archiving and future reuse. The session will also include extracts from real-world consent forms used by researchers and the model consent form recommended by the UK Data Service.

There will be time at the end for questions and discussion.

Presenter: Dr Hina Zahid

This event will be livestreamed on our UK Data Service YouTube channel but the chat will be disabled. By registering and attending the Zoom event you will be able to ask questions and interact.

Recordings of UK Data Service events are made available on our YouTube channel and, together with the slides, on our past events pages soon after the event has taken place.

This event is part of our UK Data Service introductory training series: Autumn 2024.