Sharing experiences
Dealing with complex data issues
Data sharing isn’t always straightforward. Complex issues can arise that need careful thought and good judgment. To illustrate how archiving decisions are made in real-world projects, we’ve compiled examples from researchers and organisations who describe their approaches to preparing and sharing data responsibly.
Examples in practice
Various issues have been encountered, and successfully overcome, including:
The data life-cycle of an archived qualitative study used for teaching
NHS administrative data linked to national longitudinal cohort studies
Rapid data sharing during a pandemic
Assigning the appropriate level of protection to longitudinal survey data
Balancing teens’ privacy with desire to share data
Dealing with sensitive data
Negotiating complex anonymisation requirements
Addressing the challenges of retrospective consent
Balancing confidentiality with the usefulness of data
Where archiving has not been planned from the project’s inception
Archiving complex data ten years after the research
The contributors
Thank you to the researchers and organisations who shared their experiences and ensured data are made available for future reuse:
- HM Inspectorate of Prisons (HMIP): Repurposing inspection data for research: the HMIP survey journey.
- Sarah Nettleton: Being a Doctor: a Sociological Analysis, 2005-2006.
- The Centre for Longitudinal Studies (CLS): NHS administrative data linked to national longitudinal cohort studies.
- Understanding Society: Rapid data sharing during a pandemic – COVID-19 study.
- Dr Lisa Calderwood: Assigning the appropriate level of protection to longitudinal survey data – Next Steps.
- Sheila Henderson et al: Inventing Adulthoods: the Showcase Archive.
- Jane Seymour: Consent for data sharing in sensitive qualitative research: burden or benefit?
- Jane Elliott: Depositing the Social Participation and Identity Sub-Sample, 2007-2010.
- Maggie Mort: Health and Social Consequences of the Foot and Mouth Disease Epidemic in North Cumbria.
- Karon Gush: Understanding Couples’ Experiences of Job Loss in Recessionary Britain.
- Bethany Morgan-Brett: Negotiating Midlife: Exploring the Subjective Experience of Ageing, 2006-2008.
- Pat Caplan: Concepts of Healthy Eating Food Research: Phases I and II.
Training and resources
We run a programme of regular training workshops covering key areas of preparing and sharing research data, complemented by asynchronous resources on our Research Data Management learning hub.
Contact us
If you would like to discuss any of these issues further, email the Collections Development team or telephone: +44 (0)1206 872143.